My sister, Sandra, had her anurysm rupture two days before going to the hospital in Dallas. It ruptured on a Saturday and they did not do surgery until Wednesday. She came through the surgery fine only one seizure, but she is having lots more problems after going home.
She can't hold her head up straight, she says it hurts her to hold it up. She smokes three packs of cigarettes a day instead of two. (There no use saying anything to her she will not quit) She always looses things, she lost her heart monitor they gave her to wear, she hung it up in the closet. I took her to the grocery store she lost the checkbook, just things like this. I told her a least she could play hide-and-go-seek by herself, which she laughed.
She will be 50 in September and has an nine year old son and a husband that was there for her everyday she was in the hospital, three weeks, now he really must be getting fed up with her, because she calls me or my mom crying, because he treats her like a child.
Is there any suggestions or any type of anything that she might be able to do to help herself, build herself up.
Update 3 Oct 2000
It has been 5 months since my sister's surgery and I must say she isn't much better. The AVM is repaired, she had had no more seizures, but every other part of her body is the pits. I don't think Sandra got the full effect or the seriousness of her condition, because at the time she was addicted to Vicodin and was taking anywhere from 25-40 a day, so when her AMV ruptured she stayed home for 2 days. Everyone of these letters I read tell how it was the worse pain ever. Not for her she was too drugged.
Now she is without the pain pills and attending a Methadone Clinic. Like I said she has lots of other problems, her legs swell all the way up to her hips. She had triple bypass 7 years ago has a lot of tachycardia. Is insulin dependent, smokes 3 packs of cigarettes a day if not more. Doesn't watch her diet. What I think I am saying is she needs a lot of support, she doesn't have a computer so I was wondering if anyone had anytime to write a letter of encouragement I think it might help her. Her address is:
905 Rock Creek
Oak Leaf Texas 75115
She needs something, she can't drive, her neighbors work, except one and she has her father their and autistic daughter, so she can't help.
I've tried to get her to quit smoking, to take notes, to take a walk, hold her head up. Sometimes I think we are just talking to ourselves. When you say something to her she changes it around so that it seems something bad about her, but it isn't. The other day my mom said you let your son get away with too much, and she took it my mom said she was a bad mother. I know she is depressed, I know it takes a long time to recuperate, but does it ever get better? I know it does because I have read all these letters. That is why I need outside help. I even tried getting her in this church and because the preacher didn't get back to her soon enough, she thought, she called and chewed his secretary out accusing him of not wanting anything to do with her because she is ditzy.
Anyway please send her a letter of encouragement, stop smoking, take notes anything, please.
Update 14 Jun 2001
Things haven't changed much since I last wrote about my sister,she is still on the methadone, smokes 3-5 packs a day - holes all in her carpet, chair, etc. and she still doesn't see a problem. I talked with her neurologist and he said if she hasn't changed in 6 months this is the way she will be forever, and he seems to be right.
Sandra had psychological testing for SS. and she thought the Dr. checking her out was a patient. I know some people on this site wrote to her but she forgot where she put the letters to write them back, so what can a person do.
Update 7 Aug 2001
Sandra has been in the hospital for a week now, 5 of those days have been on a respirator. Her Tegratol levels were nil so she had a seizure on Tuesday a neighbor found her passed out in the back yard, called an ambulance and she had another seizure on the way to the hospital. I stayed with her the first night she was restless so the second night they gave her Ativan, so with that and the Methadone withdrawals since she wasn't getting it in the hospital she was sleeping a lot, I decided to go home about 10:30 pm. Big mistake she had a seizure in her sleep no one witnessed this and she aspirated on her on vomit. So needless to say when I got there the next day they had her on oxygen and she was struggling to breath. I told the nurse to get the Dr. in here now. She said, "we paged him". Well another nurse, was kind enough to go to the other floors and find the Dr. and he tubed her in the room.
So now, she is in ICU 6 days and last night she pulled her own tube out, she was watched really well there also. I haven't seen her yet, but her husband says she is confused and they haven't given her anything for going on 3 days so they could take the tube out. The first day she lost 15 lbs of water from her legs being swollen from the methadone, and still losing. So waiting to see the Doctor. Big joke haven't seen him since he tubed her. So her husband has been up there since AM to see the Dr. since the nurses says he comes in so early. Guess what no Dr. (shame, shame) So if the Dr. doesn't come in he said he was going to wait in his office till he did see him.
Well anyway after Sandra gets out of here she is suppose to go to a psychiatric facility. They say she is severely depressed. No duh, how can she not be depressed. So the saga continues.
Update 6 Jan 2002
Yesterday (January 3, 2002) my sister, Sandra Lynch, died in a house fire. As of right now no one knows what has happened, her husband and son 11 got out alive, but from what the firemen said, they think she was dead before the fire broke out or the carbon monoxide killed because she had not tried to leave the chair. They lost everything and a mother and wife. She was not getting any better only worse and I took her to a new PCP three times and he didn't want to treat her any longer because she was too ill, she was only on 21 meds I don't know why he would have thought she was to ill.
The day before she died they did a CAT Scan and EEG and the neurologist said it was fine, but she had lost the use of her right hand. All I know is my sister cried for help from the medical profession and they treated her like a crazy person because they did not believe anything thing was wrong. She had even given up her methadone and waiting for the day she could drive again on March 1, 2002, she wanted to have her independence back so badly. All I know is I hurt for me, she no longer has the pain she is with my Lord and Savior.
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