TALK TO A
Established April 15, 1995
University of West Georgia Disclaimer
14 November 2007
My son Ellis died from am avm when he was five days old. I was full term and everything was ok when I went into labour. I was in labour 5 days but when I had him he wasn't breathing. It took them 10 mins to get him breathing again then he was rushed to special care. I was screaming, it was awful. he was perfect but very ill. At first they thought he had a bad heart as it was enlarged.
After many scans and tests we were told he had an avm and it was so bad that he was already brain damaged. We were told it was best to let him go, that he'd be blind, deaf, unable to walk, eat or even breath on his own. After much sobbing and thinking we decided it was best to let him go. He lasted around four hours after we took him off his ventilator. At 9.25pm he died im my arms, it was heartbreaking but we did what was best for him, avms are nasty.
As then 2 years after my brother's dad collapesed on his 40th birthday and was on a ventilator for 3 days before we found out hed been born with an avm but it was unknown. So his ventilator was turned off also as he was braindead. So I have lost two people in 2 years to avms and we need more stuff to be done about it. They dont even know the causes and I for one would like to know why my son got this
Discussion, comments, or questions: Natalie Mallinson
© Copyright 2006 Natalie
All Rights Reserved - Fair Use acknowledged